In Sweden with its' 9 million inhabitants there are not so many diagnosed with EM/SJS/TEN. We don't yet have information on the great variation in the horrors of EM/SJS/TEN. Would you mind sharing your story on this site? To avoid misdiagnosis and to give so much information as possible for those suffering from EM/SJS/TEN in these nordic countries. I also would like to have your permission to translate your story into swedish. Thank you so much for helping out.
- All over the world people are, can and will be affected by EM/SJS/TEN -usually caused by adverse reactions to either a drug, chemical or virus. In severe cases, SJS/TEN attacks the skin and mucous membranes. The result can be blindness or even death.
- Physicians are often unfamiliar with the condition, which can lead to an initial misdiagnosis.
- EM/SJS/TEN remains relatively unknown also to the public.
- The best way to spread the word is to share our storys.
- Early diagnosis and appropriate management to avoid permanent damage, is one of our aims.
- Please, share Your story - email me for publishing.
- Make it long, or just a short resume.
- Anonymous if you wish.
- Maybe these questions can help you getting started?
- age/sex?
- when did you get sick?
- EM,SJS or TEN?
- what was the cause?
- what were the symptoms?
- has anyone in your family/relatives had similar symptoms?
- what treatment - at home or in hospital
- more than one onset?
- what symptoms/permanent damage do you have now?
- how do you feel today?